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People with Borderline Personality Disorder Speak Out Caution: These letters include triggering material. Smile, he tells me I am a 51 year old woman who has suffered from bipolar disorder and borderline personality disorder since teen years, but was not diagnosed until 6 months ago. I am the poster child for early intervention! My entire life could have turned out differently if I had known about this illness earlier. I wasted time in college, in jobs, and in relationships; had I known about this illness sooner, I may have been a more healthy individual. But I am glad to be picking up the pieces now. I now am writing my first novel and work in a library full time. Medication and therapy has saved me, literally. A brother and two first cousins died from this illness. I hope to live to be a very eccentric old woman! I'm 21 years old and was diagnosed with BPD 2 months ago. In some ways the diagnosis has been a relief, because I don't feel like I am the only one in the world out there that acts this way, but on the other hand when I hear how little hope there is to "cure" it totally I feel worse. My father is also mentally ill, but not in treatment. He took me from my mother when I was just two years old, so I have always felt like a motherless child. I have attempted suicide three times, most recently in 1998 which led to a stay at the hospital. I am married now and have a 17 month old daughter. I moved always from my home about two years ago but I am miserable even here. It followed me again, it always does. I have tried a lot of different meds. I recently found out I am pregnant again so I am no longer taking anything. The past six months I have "felt" the meaningless despair come back. In the morning I wake up with such a feeling of helplessness that I don't know what to do. It's like I walk around with a sign on my head that says "you handle it-I am incapable." Working has always been difficult. Since the birth of my first daughter I haven't worked. I am in school for social work and I hope one day to have a normal 9-5. I love being at home with my daughter, but when the depression sets in it is SO HARD. I think the worse part is the isolation and loneliness you feel but can't seem to come up with a solution to ease it. My prayers are with all of you. Will you please put me in yours? This the 1st time I am going to express my self to others because I feel safe that now one knows me. The feeling I have when I am hurting is like a cancer that is eating away my life. It is a silent pain that I won't share with family members or coworkers. I feel that not even my children like me and the only reason they come around is because I am their mother and they owe it to me, I got of the subject I feel and think that at least if you have the real cancer they can cut it away and get chem-o and get better. But with this cancer I have it just eats away my life, it's a silent pain and a slow death. I just keep questioning myself what can I do different so that I don't feel so alone and unworthy of life. Am I the only one that feels this way? What is it to be a "consumer" of the mental health system in Quebec? From where I sit tonight, it is to be your own social worker, psychologist and physician. Two nights ago I tried to take my own life with the very pills designed to improve it. No - I'm lying. I didn't want to die - only to find the help I so desperately need. What I got was a pair of ambulance technicians and a pat on the head. I was left alone again and I mean alone. The ambulance dispatch doctor promised/threatened to call my former psychiatrist and tell him what had happened. The psychiatrist has not had his secretary schedule an appointment for me and is never available for my calls repeated calls. The CLSC (a community resource designed to help lower income needs as far
as mental, physical and financial assistance) refuses to see me until I have
"wrapped things up" with the above mentioned former psychologist.
The psychology outreach program of the nearby prominent hospital can not tell
me how to go about finding a social worker other than those offered by the
CLSC. My doctor, after referring me to an overbooked psychiatrist could give
me no other telephone number other than the CLSC. Its like running around in a
maze with no exit. I was diagnosed as borderline about a year ago. I didn't want to be, I knew it was coming. Like most others with BPD, I had a hard life. I hated myself. Then I felt guilty for feeling that way. I wanted out. I wanted it all to end, to go away. But it didn't, it got worse. I felt worse, I hated myself more. I buried myself in those feelings, and the only way I felt away from them was to create false securities all around me. An imaginary wall of safety that ended up making it even more horrifying in the end. I wanted to be loved. I imagined that I was. I let myself be taken advantage of. Everything started to hurt. Everything became so painful. One wrong comment, and I was in tears for the rest of the day wondering why everyone hated me so much. Wondering what I ever did to deserve this. I couldn't understand, in fact, I still don't understand. How much of it was real? How much of it did I create in my mind? How much of it did I encourage? How much did I provoke? I know how much it hurt. I know how much they didn't understand me. I know I got away. The people who I thought I could never live a day without, were the same people who took my soul from me. And they never even knew they were doing it. They thought they were helping me. They thought that they understood. They still think that. But now with them gone my life is easier. I'm not afraid to fail anymore. I'm not afraid to care. This hurts them more because they can't understand why I am happy without them. I still feel guilty now...but only sometimes. I wrote this because I know that there are so many people who feel like me. And we aren't crazy, we aren't selfish, we're scared. And it's hard to see that it could ever be better. I have amazed myself at what strength I have inside of me. I never thought I could be so brave and so determined to do anything. I still may be a far cry from the NON-BPD individual, but I'm alive. And I'm here, and I'm struggling, and I'm me. And for the first time, I'm proud of myself. And I realize that I am the only person in this world that can make myself happy. I still get down, I still cry, but I know that it is only temporary. I know that I have that strength to make it better. And if I start to doubt it...I pick up my DBT workbook, I cry, I read it, and I move on. God bless you Marsha Linehan! i've come so far It is a relief to know Hi, I'm Liesbeth and I live in the Netherlands, and I'm so glad that this sanctuary exist. I like to say thank you to Mary who wrote a beautiful poem about a dragon. And I like to thank Marsha Linehan for bringing her therapy to my country. I did the therapy for three years and I start to see the things I have to work on. Please everybody, see the little girl inside of you. She needs your attention. It will take a lot of pain and tears, but she has to come out of her hiding-place. Again I will thank Marsha Linehan for her work. I reed her book every day and with my therapist I work hard to try to make my life better. Excuses for the errors of language, but I wanted to say how I feel. Lots of love and courage to everyone who suffers from Borderline. Liesbeth. I'm 30, diagnosed when I was 15. I've ignored therapists since. My Doc at the time was trying to convince me I'd been sexually abused when I was younger, which I knew was absolute garbage. That isn't denial, it's the truth, I wasn't abused, but he was trying to hard to push a diagnosis on me that would "fit". Guess he didn't pay attention to the 25% who felt abandoned as a child... that's where it started, and I know it. The rest of his diagnosis was pretty much right on, but my thought has always been to treat, not delve into the past to have some sort of catharsis... it doesn't work that way, at least not for me. He didn't treat except to give me meds and keep me in a mental hospital, which I detested. Stopped the meds.. haven't been to a therapist since, as I already stated, and no suicide attempts since, no self-inflicted injury either. Had a panic disorder for a while after someone attempted to rape me, put myself through immersion therapy with the help of a friend, shucked that off too. My thinking is that I REFUSE to be held down by a disorder or a diagnosis or some sort of pre-conceived notion of how I "should" be, based on a set of symptoms. I am not merely a bundle of personality traits to be written down and then labeled, I have the power inside of me to change how I react, how I feel. My mother told me to use my intellect (which, this is the first time I have stated publicly, is not inconsiderable... 163 Stanford-Benet, but I normally don't like pretentious idiots who throw their IQ around like it means anything but a measure of accumulated knowledge and swiftness of thought... had to mention it here because it does have some bearing, as I'd bet all of you are also right in that range...) to fight the emotions that threatened to overtake me. The stance that "BPDs don't have empathy for anyone else" is pure unadulterated garbage. It is a learned, slow process of training oneself to think of something besides oneself. We are all born selfish and shallow, none of us, not even those diagnosed with BPD, have to stay that way, much as everyone else around us tells us that "that is the way you are". Garbage. WE decide how we are. WE decide how we are going to react. The pain is incredible, absolutely. Relationships are rocky, life is a painful, bewildering array of loss and deceit. The idea is not to immerse oneself in a continuing morass of excuses ("I can be this way because of my diagnosis", or "I am just like this"), but to continually try to better oneself, one small step at a time. And it's one hell of a battle, BPDs I have met are some of the strongest, most incredible people I have met. We are, in the truest sense of the word, survivors. If anyone can take on the battle of bettering oneself, of a slow reduction of pain, of a single thought here and there that might accept the possibility that your loved one can screw up and yet not leave you, that you CAN put yourself in their shoes and feel how they might feel, one SMALL STEP at a time, it is BPDs. We are not stupid, intelligence is a factor in BPD, as I mentioned above. We can use our intelligence to overcome this as well. Do it your own way, but I promise you, if you hold on, even through the absolute worse, hellish, unreal moments, the small other moments of pleasure, of Heaven on Earth, will be yours. Think of it as I do, if it helps... the most horrible times, the nightmare times at 3:00 am when you are alone with your thoughts and your closet door is unlatched a bit and your friend upset you and you're wondering if your outburst at them will drive them away, all that is in your head... you are on a small dinghy in turbulent waters. Your thoughts are making the boat sway to and fro, you feel as if you might be sick, or cry, or cut yourself, and all is hopeless, HOLD ON. Because, I can promise you, not immediately maybe, but it WILL happen, that big old cruise ship full of food and lights and fun will come to you later... it DOES get better. It also helps, I believe, to develop a crutch. A psychiatrist might disagree with me, but I've done this alone for 15 years, with NO SUICIDE or CUTTING attempts, so I do feel qualified enough to say this. Develop your peace crutch. Think of the most soothing, pleasurable activity you can. Mine was cross-stitch. Yours might be something else, just make sure it's not self-destructive. Think of it in detail.. for me, the floss going in and out of the cloth, a soothing, still motion, creating a beautiful picture. Now create that thought into a package, a totem, if you will. When the despair sweeps over you, take out your package and unwrap it. If the anxiety becomes so bad you disassociate, take out the package, and do it, mentally (this prevents you from having to carry your totem everywhere.. you can't cross-stitch and drive, trust me..) It DOES work, but you must, first, yourself, be willing to work and to fight. That's it from me, a small message of hope here, a real message for real people. And because I CAN feel empathy, I cried for a lot of you, I pray for all of you. You are the strongest people this planet has to offer. I was recently diagnosed with bpd. I spent a month denying it, ignoring the
thought that i now had a label on me which would make people see my in a more
horrible light. But eventually, I accepted the truth-it wasn't hard, I've been
sick for a long time. Well I've not been officially diagnosed with BPD, but I'm sure that if I'm
not DSM level borderline I certainly possess the majority of its features. And
through the many postings and websites, etc. that I have read I see myself
reflected so clearly that it's quite frightening. In fact, I believe that this
explains quite a lot about my entire life, the way I have always viewed myself
(to greater and lesser degrees at different points in Hi I am 19 years old and i have had bpd most of my life .This past year has been the hardest I have been in 9 hospitals I missed my birthday and christmas .nothing helps it bothers me cause i know i don't have the normal life of a teenager i have alot of trouble dating cause i get so attached way too fast and when they leave me i just get more and more scars from cutting my arms the hardest thing is looking in my parents eyes and knowing they don't understand why i hate them one minute and cry the next for someone to love me i recently found a awesome boyfriend and this past weekend we moved in together but as much as i love him the pain is there or should i say the fear i don't eat or sleep i am so worried he is going to leave me i need help really bad and don't know who to turn to so i am asking everyone who reads this pray for me and ask god to give me the strength to make it through thanks you hello everyone my name is joann. i am 33 years old and work as a psychiatric nurse. i was quite adapt at dealing with bpds on an inpatient unit, and god were they difficult. always, always finding things to hurt themselves, and ultimately because of agitated behaviors would end up in restraints. it was always a long day at work when a bpd was in rare form. anyway, i was getting ready to get married in 2 months when weird things started to happen to me. big time depression, angry feelings that wouldn't quit, and those horrible thoughts of hurting myself to relieve anxiety. the flags were there i just chose to ignore them. take a pill, see a therapist, get married, have kids, make money and be happy. wrooooooong!!!!! 2 weeks after i got married i was admitted to a psych unit for a suicide attempt. for the first time i saw what it was like to look out from the inside of the QUIET ROOM. there i was exactly what i hated most, angry, self mutilating, depressed, unmanageable. the docs told me i was bpd and let me tell you that did not sit well. i tried everything to prove the label wrong. only to prove them right. long stays in the hosp. no responsibilities, with a tremendous power to AVOID anything that was emotionally uncomfortable. even my poor husband whose life changed in a day. state hospitals, local ers, private hosp and even out of state hosp, nothing helped. nothing. i was alone. i was so alone and so very angry. lots was discovered in my times a the hosp, childhood things, the death of my mom when i was 15,relationships i had, coping skills i so very much lacked. therapist after therapist, day programs, community living, lots of MEDICINE.. i look back now and i say to myself what the hell happened? this of course being 9 years later. i finally found DBT and a therapist who who taught me that being bpd wasn't a defect in my makeup. there were reasons and answers to my pain. there were survival skills she taught based on Marcia Linehan's Dialectical/cognitive behavioral therapies. don't get me wrong, things were not a bed of roses, and i put her and myself through some really bad times. But, we are still moving towards mental health and a somewhat more functional life. i have got lots of stories, lots of battle wounds, but i am still here. i am back at work after years of disability, and when i see a patient with bpd i remember me how i was before and how i am now. i finally can see their pain and hear their cries. i don't of course allow
the behaviors but i can now offer something more than just medicine. i
can offer HOPE. I am alone and yet not alone. There are the ones who came before and the ones yet to come. We all have the fight before us at all times. I am drawn to join those already gone, done in by their own hand. I am also drawn to those who will come. I want to tell them to fear nothing except their own black thoughts. There are some here and now. We are slowly finding each other and are reaching for the understanding that only we can give. All in this group fight the same battle and yet each fight is different. Even though we don't know why we have to fight we fight endlessly to get further down the road than we were before. Some of us live, some exist and some don't exist or live. We call and reach out for help from the humanity around us and only get hit for our troubles. The surrounding humanity makes no sense to us because they call to us to reach out for their help and then turn on us and tear us to bits. We have started to band together so that we can see each other and help each other fight our battles. Alone we fail but together we press on and start winning some of the battle. Eventually, we will make our voice be heard throughout the world just because of our number and unity. We will press on through much to get to the little. We will go through the little to get to the love. When we get to the love there will be no stopping us. We will uphold our honor and our code. We are the Borderlines of the World. Sometimes I can't stop crying. Everything in my life and in my mind feels
like it's imploding and killing me. I cut myself so I can stop crying. Reading all of these true stories here has given me an inkling to share my
own. I'm 24 now, going on 25, and was diagnosed with BPD four years ago. All
of my life I have been a shy creature...afraid to do a lot of things but
wanting to so desperately. High School years were terrible for me, so I
created a character that would laugh a lot and tell a lot of jokes so no one
could get to the real terrified me. My College years just amplified that
persona, and drew me into a terrible depression after a party gone wrong. I've
been hospitalized, and treated with many anti-depressants and anxiety
meds...but well, I've chosen poetry as more of a release these days. It
doesn't leave me with the Euphoria that I felt on those medications. Here is a
poem I wrote last year about the cycle I know I go through, and probably many
of you go through too!
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