Q. My husband and I have a 20-year-old son who was diagnosed with Tourettes
syndrome at age 13 and put on Orap, a very strong antipsychotic drug, which
worked very well in controlling motor tics, his only TS symptom. He is an
accomplished classical musician and straight A student. A month ago, while
attending college in California (we're in Chicago), a neurologist weaned our
son rather rapidly off the Orap, warning of tardive dyskinesia. Our son was
thrilled that his motor tics were practically non-existent post-adolescence,
but suddenly he suffered a tremendous manic episode causing hospitalization.
My husband brought him home. (To top it all off, he also caught
mononucleosis, which explains why the psychiatrists in CA had never seen a
manic person sleep as much as our son did.) Now a psychiatrist in Chicago
has him on 10 mg. of Zyprexa and 1,000 mg daily of Depakote. We don't think
the meds are working well, but because our son is 20, no doctor will deal
directly with us. Our son is definitely not himself, and we are frightened.
It is incredibly frustrating to see our until recently healthy, successful
child spiraling downward. He wants to go back to school, but he is exhausted
and I would say hypomanic and quite irritable. He has no focus for studying
or music practice, and we are all at our wits' end. Might the mania have
been brought on solely by the discontinuing of the Orap? When a person is
impaired, can't the doctor at least receive information from the parents
without breaking doctor-patient confidentiality? The psychiatrist will not
even return phone calls we have made reporting that we suspect our son is not
taking the Zyprexa.
A. Very good questions. I will answer the easy ones first. You can give any
information you want to a psychiatrist. It is only breaking confidentiality
if the psychiatrist gives you privileged information about your son without
your son's permission. I am sure the psychiatrist is busy (or at least will
say he is), so you may want to pay for the time. Your insurance will cover
this, so you and your husband can talk to the psychiatrist with or without
your son present. Perhaps your son wants you to be at one of his medication
management sessions. That makes everything easy. If no one is happy with the
results, discuss it with the doctor. If there is no satisfaction, get a
second opinion.

